Sunday, October 30, 2011

London Interrupted


Long story short- if you didn't know already- I am back in Indianapolis.

So here's the story from the recent beginning.

I went to London for my study abroad (if you haven't read about that, you can at kavanwyk.blogspot.com).  I got a cough and went to see a doctor about it after 3 weeks. The doctor I saw listened to my breathing and my explanation of events (a cough off and on since January, "cured" at the end of August with steroids) and decided that I had hay fever.  London has notoriously bad air quality and a lot of foreign pollen so it kinda made sense, except that the cough sounded awful. He prescribed a nasal spray, antihistamine and inhaler and wanted to see me again in two weeks. Over the course of the two weeks the cough got better slowly but surely. I went back to the doctor's office and met with a different doctor. She listened to my breathing and suggested a chest x-ray. We did two x-rays and the doctor noticed an infection in my lung and decided I should go to hospital.

I checked into Bupa Cromwell hospital that Friday (October 14). It was a very nice hospital, private so I had my own room. Mieke, a wonderful, lovely woman from my study abroad program (IES) met me at the hospital and was with me from the time I checked in until later that night when all my tests were finished. Friday evening I had a neck ultrasound, lymph node biopsy, ct scan of my neck, chest and abdomen and blood tests. 

Saturday morning saw another blood test but most of the weekend I spent hanging out in my room. Elaine, another woman from my program, came by on Saturday and spent time with me.

Over the course of the weekend and what became the week, I had a nice stream of visitors. Mieke was back Sunday and everyday during the week. Elaine came back and Hilary, also from IES, came a few times as well. I cannot speak more highly of the support I received from IES while in hospital and upon leaving hospital and returning home. They were also amazingly supportive of my mom and aunt, emotionally and administratively as we got results from doctors, phone calls from insurance and any number of things.
Back to my lovely list of visitors.  On Sunday, Juuso, my aunt and uncle's past exchange student, came by for a visit. Heather and Michelle, friends from my program, came to visit during the week as well.  I also received a visit from the English coworker of Tom Creveling (a good friend at home), she came with lots of snack food and reading material. My mom and Aunt Becky showed up on Wednesday.

Wednesday morning I had a brain scan. That was fun... Wednesday night I had surgery to remove a lymph node from the area under my right arm. The surgery went well and I came out of the anesthesia well, except for some nausea. That night the doctors began to prepare me (my body anyway) to fly back to Indianapolis for further tests and treatment.

Thursday, Mom, Aunt Becky and I went out for lunch. It was a really yummy burger joint. That night we were given the preliminary diagnosis of lymphoma, yes you read that correctly.  

Friday (now October 21) I went to my dorm and packed everything up, ate at My Old Dutch and used up some groceries for dinner- I made tacos. I had the chance to share the news with most of my new friends in London and was able to give away some of the stuff I had acquired- pillows, sheets, food etc.- that didn't need to fly home. We returned to the hospital for a final prep before the flight. 

We flew out of Heathrow early Saturday morning. Because of my lungs and not being able to walk distances, I had a wheelchair at each airport which expedited security and customs. The flight from London to Chicago was long but without incident. I was able to sit with Mom even though we had gotten last minute seats and our assigned seats weren't together. I walked a few laps around the economy section of the plane to keep the blood flowing every hour and to break up some of the monotony of the flight. We made a quick trip through O'Hare with my wheelchair- I don't think we would have made our connection without the wheelchair and the official pushing me. We did have time for a wonderful McDonald's snack before the flight. For the flight from O'Hare to Indianapolis, I was upgraded to first class thanks to another friend, Belinda Mulhern using her frequent flyer miles. It was a very nice flight and quick though it was the most difficult emotionally. I thought that I was okay with returning home and such but having it happen, I realized how sad I really was to not be in London anymore and how unromantic Indianapolis is.

Since being home, Mom, Dad and I met with Doctor Cripe from IU Health on Sunday to hand off the reports from London and the removed lymph node. On Monday night, Doctor Cripe confirmed the diagnosis of lymphoma and that it looked like Hodgkins. On Thursday we went back to IU Health and met with Doctor Azar. He spoke with us about Hodgkins lymphoma and the treatment I would be going through. It was also decided to have a second surgery to remove another lymph node to try to find a more definitive diagnosis. We arranged for my first chemotherapy treatment- Wednesday November 2.  Friday morning Mom, Dad and I went back to IU Cancer Center for surgery. From my understanding, everything went very well with the surgery and 3 nodes were removed. I am currently recovering well, just a bit of pain and tiredness. 

Also, tomorrow, Halloween, October 31 is my 21st birthday!!!! November 1 is my grandfather's birthday!!!! And November 2 I start my chemo treatment (exclamation points no being used here for obvious reasons).

On the positive side of things, on November 8 I will be dying my hair purple at a local salon. Kim and my cousin Emily are getting purple strands to show support. Miss Becky (from church) and Family have already used temporary colored hair spray for a supportive purple look. If you are interested in more info about the hair dying, email my mom at juli@iquest.net. 

Now you are up to date. It isn't fun news to share but life isn't always fun. I have decided that I won't be private about this disease and what happens as I go through it. This will be a place for me to tell my side of the story and how I feel about it. Mom and Dad might put together another page but this is from me. 

20 comments:

  1. Kelsey, I am so, so sorry to hear this news. You're an amazing woman and I know you will fight this! Enjoy your birthday! 21 is a big one;) And know that I will be praying for you and thinking of you.

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  2. Kelsey, thanks for the openness and the sharing and the great writing.
    It makes it easier for all of us to be in this together with you to hear your brave and positive and HONEST accounting of your experience. We'll stay tuned to see how we can help make it easier to get through. Love and prayers - Sandy

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  3. Kelsey - Happy Birthday!

    Thanks for sharing with us. Thinking of you from Texas.

    Alex, Casey and Parker Dawson

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  4. First Happy 21st Birthday.

    Kelsey, I heard about your unfortunately twist in life from Katherine's post on fb. I was shocked, as I am sure you and your family were. I instantly said a prayer for you, and will continue for you and your family.

    I pray your attitude stays postive. I sense you know that you cannot change what has happened, but can only deal it one step at a time.

    If you ever need something,like being taken to a treatment, let me know.

    May God watch over you and keep you strong.

    Mrs. O'

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  5. Hi Kelsey,
    Happy Birthday! We at Broad Ripple Kiwanis are proud of you and are praying for your rapid recovery. We know that you'll beat this and continue on your journey.
    Surrounding you with positive thoughts,
    Susie Neal

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  6. Happy Birthday for yesterday, Kelsey. We're all cheering you on here at the Foundling Museum in London. The blog is an excellent idea. My mum has cancer and she finds writing her thoughts down helps release stress from her body, which gives it a chance to use energy instead to defeat the 'Evil Invader'! Purple is definitely the way forward...
    Annette

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  7. Kelsey, I am sorry to hear this! You are a brave young woman and have chosen an extraordinary way to deal with it! I have no doubt whatsoever in my mind and heart that you will make it through all of this and come out stronger. God is always in control, this you've known from the time you were born. No evil invader!Every illness has a lesson and is merely the body's way of talking to you. Only you can decipher what it is your body is trying to say. As an herbalist and aromatherapist, I would love to be consulted by you or your family at any time. Happy Birthday! This is one birthday you will look back on years from now and talk about with your children and childrens children. Today is mine! I will be praying and thinking of you!

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  8. Kelsey - Thanks for sharing and know that the Fritz family is thinking of you often - especially tomorrow. Hang in there.
    Julie

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  9. Kelsey,
    As if you don't know it all of your Fairview "grandparents" are pulling for you.

    Mark Lawson

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  10. Kelsey---WOW! My thoughts and prayers are with you as you tackle this challenge! May you feel all the love and support that is surrounding you! Go Purple!
    Jenni Crowley Cartee

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  11. Kelsey, I was so shocked and sorry to hear about your sudden illness from Katherine's Facebook page. I shared the blog page with Pam (Van Wyk)Bekas and all of our prayers are with you and your family as you begin your treatments.I know that God will give you courage and strength each day. On a happy note, I hope you had fun on your 21 st birthday. My love to your family, Mary VW

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  12. Kels,

    Shocked doesn't even begin to describe my thoughts. I have shared your story with several energy healers (reiki) and we are all sending you the love! Thank you for putting all of this on your blog in order to help us better understand what you are going through. Much love and prayers to you and the family, my dear!

    Peace~
    Allison

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  13. Kelsey - love your dye your hair purple attitude! Our church family is praying for you and your family. So many peope love and care about you and want to be there for you guys whenever you need us.
    Thanks for sharing your story, so we can walk this journey with you friend. I'm going to get some grape kool aid at the store so we can share the purple!

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  14. Kelsey darling!

    This just sucks. I really support the fact that you're sharing your thoughts, opinions and frustrations with everyone. You're very brave. Even though Indy can seem pretty unromantic (definitely compared to London), it's chock-full of people that are here to support you. Let me know if you ever want to talk or go out and get some tacos! I'm in Indy from time to time and conveniently located down your street. :) My thoughts are with you Kelsey!

    Christie

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  15. Kelsey-We have been keeping up on all the news even though we don't live in the neighborhood anymore. We miss seeing you and I greatly enjoyed reading your blog. I look forward to future entries and hope we can help out in any way. I'm on the food sign up so hopefully I can swing by someday and say hello. In the meantime, take care and you and your family will continue to be in our prayers. Happy belated birthday!
    Krista Plank

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  16. You are an amazing, eloquent and strong young woman - and I have No Doubt that you will Beat this! My mom had Hodgkins - was diagnosed at 17 years old, lived with it for 30 years, and died from phenmonia - but, today - that would Never have happened! The early detection and treatments available are so much more sophisticated and effective! Hang in there, continue to Speak about this and you have a wonderful support system of family and friends and loved ones - and "new friends - like me " who are thinking of you every second and are rooting for you !! I say you are WINNING !!!

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  17. Hey Kelsey, hope the chemo went okay this week. Thinking of you! Love from London. x

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  18. Suck! I just heard about your from your Aunt Tammy. Just want you to know another stranger is rooting for you. I hope all goes well for you this week with your first round of chemo. I'll be sending lots of prayers your way.

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  19. Kelsy, in all seriousness -- and we both know how rare THAT is -- you have a delicacy of word use, and an underlying wit that makes your writing a pleasure to read.

    BTW, the HiDi and I are waiting until, say, February to overwhelm you with offers of help. By then, you may actually need it.

    Gordon Lamb
    If I Were A Wine, I'd Be 'Vapid, Yet Reeking'

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